bibliography

Comprehensive preventive care assessments for adults with intellectual and developmental disabilities-Part 1: How do we know if it’s happening?

Objective To determine how to best measure the provision of comprehensive preventive care assessment to adults with IDD.

Design Cross-sectional.

Setting Ontario.

Participants Adults with intellectual and developmental disabilities between the ages of 40 and 64 in 2013/14.

Main outcome measures The health exam defined using the Ontario Health Insurance Plan (OHIP) billings data feecode A003 with diagnostic code 917 or 319, or feecode K131. As well as the Primary Care Quality composite Score (PCQS), a measure combining seven different screening manoeuvres (lipid, glucose, breast cancer, cervical cancer, colorectal cancer, eye, and HgA1c) identified using administrative health data.

Results A total of 28,825 adults with IDD were identified in 2013/14. Overall 12.09% of adults with IDD received a health exam, 51.18% received a high (≥ 0.6) PCQS. Males were more likely to receive all of their eligible screening manoeuvres if they had a health exam compared to females (OR = 5.73 vs. 3.99).

Conclusion Less than 60% of adults with IDD appear to be receiving comprehensive preventive care. Future studies assessing the quality of preventive care received by adults with IDD should combine health exam billing codes and the PCQS.